Our Story
Rayven was born with PA w/IVS, HRHS, and right ventricle dependent coronary arteries. During her shunt procedure at only 5 days old, Rayven went into cardiac failure which resulted in her having to rely on a ECMO machine, this machine became her lungs and her pulse until she received a donor heart 8 days later. At only 13 days old, Rayven became our Heart Warrior and miracle baby, now 10 years old she is the brightest, sweetest, and most caring child one will ever meet! This is a lifelong journey, and we hope to be able to cheer on Rayven’s story and many other children and their family as we spread awareness and advocate for congenital heart disease.